Baby Will was born without a portion of the back of his skull. His parents were previously told by doctors that he will be born for only a couple of minutes, yet the feisty little Utah infant, defied all odds.
At 23 weeks pregnant, Alyssa Reidhead and husband went to the doctor to check the sex of their baby. However, instead of getting the usual "baby girl" or "baby boy" response, they received a heartbreaking news from the doctor, who said that their baby was suffering from a rare condition called encephalocele.
The Rare Disease Encephalocele
Encephalocele is characterized by the baby's brain growing out of his skull. Adding insult to injury, they were nonchalantly told by the doctor that their baby will only live for a couple of minutes after being born. They were even told that the little one will "pass away during labor," reported Fox News.
Alyssa and husband dreaded the loss of their baby, yet they were also being realistic. Instead of buying the basic baby essentials such as layettes and feeding bottles, they bought a casket for their little one.
Miracles Happen
There are simply things that doctors don't foresee. When the day arrived for Baby Will to be born, his parents were surprised, elated and very much happy when they heard their little one cry like any normal baby. He was delivered via a C-section at the Primary Children's Hospital in Salt Lake City.
Although a discovery of another rare disease came about, the parents were simply happy to have their baby alive and well. Baby Will is suffering from cutis aplasia, a condition characterized by a missing back portion of the skull. His brain is covered by a thin layer of membrane, said KTLA.
The condition is not without a medical remedy. Living with the condition may not be easy but the parents find strength in Baby Will. Now, they are looking for generous people who can help them augment the expenses through their GoFundMe page so that Baby Will can undergo the procedure that will treat his condition.
